Who We Are

Welcome to Live Life Research Foundation

You don’t have to be a Doctor to save the Life. Be AWARE of the DISEASE and financially stand by the side of poor children affected by Thalassemia. Live Life Research Foundation is dedicated to serving people afflicted with various forms of Thalassemia, most notably the major form of this genetic blood disease Thalassemia Major.

Live Life Research Foundation is a registered NGO (Reg. no. F/16863) established in the year 2013 with the pledge to help the Thalassemia patients. Thalassemia is a genetic blood disorder and affected patients depend on regular blood transfusion for survival, usually every 2 to 3 weeks. Our objective is to treat all thalassemia children and add years to their lives.

We have mission to increase life expectancy and enhance the quality of life for those impacted by thalassemia, a class of genetic blood disorders, most of which require regular blood transfusions and aggressive management of chronic iron overload, the predominant cause of early death. We help by supporting and advising patients and their families and advocating on their behalf and by educating medical professionals and the general public.

Vision & Mission

Our vision is a world with no patient with thalassaemia and other haemoglobin disorders across the world, and where those living with thalassaemia do so with equality and the support they need, in which every child attains the right to survival, protection, development and participation.

Our mission is to ensure widespread knowledge and understanding of thalassaemia, in order to reduce disorders and improve the lives of those affected. We will do this by promoting programmes for the prevention and treatment of thalassaemia and other haemoglobin disorder by innovative approaches, partnerships and action to inform and empower.

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